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Hope Foundation - Creating an awareness of Lupus, Sickle Cell and Arthritis

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President's Message

Hope Foundation continues to strive despite many challenges but your continued support remains the reason why we exist.

We relocated last year to ‘Warleigh’ Lovell’s Drive, Welches, St. Michael. The surroundings are uplifting and we have begun backyard gardening, (it is already bearing fruit), with the kind help of the group Victory Gardens. Support meetings have always been a key component of the Foundation and we are pleased that the facilities are very suitable and allow information to be a lot more visible and accessible.

Throughout this year there will be opportunities to train in areas such as volunteering and support facilitating.  Also, we are trying to tell the story of Lupus in Barbados through the Lupus Diary. You can contribute by sharing your experience and what you absolutely should not miss is the annual Seminar for Newly Diagnosed Lupus Patients. One of our longstanding members Sheryll Griffith has recently chosen Hope to benefit from a donation that will be dedicated to Sickle Cell.

Of course, we have to raise funds to achieve these objectives and we have some innovative ways: Your Birthday Pledge; Walk for Lupus and the Voices for Lupus Concert. In all that we do we ensure to have fun. Come and be a part of it!!!!

Full details of the activities will be published soon and I hope that there is something there that will grab your interest.  Let’s make 2020 the most exciting year in the life of Hope Foundation. With your help we can do it.

Looking forward to seeing and hearing from you.

It is with pleasure that I wish all success, health and many blessings for 2020.

Kind regards

Shelley

President

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Arthritis

arthjointsArthritis is a general term for diseases affecting the joints. There are over 100 different types of arthritis.  The most common types include:

  • Osteoarthritis
  • Rheumatoid arthritis
  • Arthritis associated with Lupus and other connective tissue diseases
  • Gout
  • Arthritis associated with infection, psoriasis, inflammatory bowel disease

Osteoarthritis is considered “wear and tear” and is ubiquitous, affecting almost everyone with advancing age. Typically Rheumatoid arthritis affects 1% of a population and is an autoimmune disease with characteristic joint inflammation.

Traditionally, once diagnosed with arthritis, it was taken for granted that there was only a life of pain to look forward to punctuated with the administration of painkillers in the more excruciating times. 

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Sickle Cell

sicklecelltransSickle Cell Anaemia is a genetic disorder that leaves no family member unscathed. This condition is found in people whose ancestors originate from Africa, Asia, the Mediterranean Islands, South America and the Middle and Far East.

Where a couple both have the Sickle Cell Trait, each time that they are expecting a child, there is a:

  • 1 in 4 chance that their child will inherit an usual haemoglobin combination
  • 2 in 4 chance a Sickle Cell Trait just like the parents
  • 1 in 4 chance Sickle Cell Anaemia, a serious blood disorder.

The red blood cells of people with Sickle Cell Anaemia, and other types of Sickle Cell syndromes, change into a ‘sickle shape’ when they give up their oxygen to the body’s tissues. These red cells are fragile, becoming hard, rigid, brittle and break easily.

People with this condition are anaemic because their red blood cells have a shorter life in circulation, only 15-30 days, instead of the 120 days life span of a normal red blood cell. Sometimes, due to their shape, these Sickle Cells can clog together and block the small blood vessels in the body. Due to this blockage, vital oxygen cannot get through to the affected part of the body. This leads to pain. If this blockage is not corrected the pain intensifies and can become excruciating. These episodes are called ‘Sickle Cell Crises’.

The frequency of a ‘crisis’ is unpredictable. The cause of each episode is often unknown although it may be triggered by certain situations such as cold weather, infection, stress or unemployment. Sickle Cell can make life very difficult for the sufferer, family and friends.

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Contact Us

Address: "Warleigh", Lovell’s Drive, Welchs, St.Michael
Tel: (246) 437-8781
Email: hope@caribsurf.com

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